Ada Website Helper

    Subscribe to Updates

    Get the latest creative news from FooBar about art, design and business.

    What's Hot

    Google Launches AI Chatbot Bard To Compete With ChatGPT

    February 6, 2023

    Google releases new AI chatbot Bard to compete with ChatGPT

    February 6, 2023

    Elon Musk and Tesla found not liable in lawsuit over “funding secured” tweet

    February 4, 2023
    Facebook Twitter Instagram
    Ada Website Helper
    • Home
    • Autism

      Autism diagnosis rates have tripled in the last 16 years, says new study

      February 2, 2023

      Autism provider AnswersNow raises $11 million to expand state footprint

      February 2, 2023

      Autism Awareness Comes to Lawrence Police Headquarters – Trentonian

      February 2, 2023

      A felon charged with impersonating a therapist at Michigan autism treatment center ordered to trial

      February 2, 2023

      Autism Society Philippines and SM Cares Meet on Autism

      February 2, 2023
    • Disabilities

      Litigation improves accessibility to voters for people with print disabilities.news

      February 2, 2023

      Stress Relief and Mental Health Support

      February 2, 2023

      ‘Extraordinary’ Court Order Granted To Allow Severely Disabled Women To Attend Neurology Appointments – The Irish Times

      February 2, 2023

      Community Public Heath Liaison – Disability Scoop Jobs

      February 2, 2023

      People with disabilities in rural areas struggle to recover from recession | Conversation

      February 2, 2023
    • Disability

      Southern District of Georgia | Lawrence County man pays reparations and could face federal jail for disability fraud

      February 2, 2023

      Hitting the Snow with New Courses on Accessibility and Disability Justice

      February 2, 2023

      ASBMB Calls for Broad Federal Efforts to Support Scientists with Disabilities

      February 2, 2023

      State abortion bans based on gender, disability, or race are not a remedy for eugenics, paper says

      February 2, 2023

      New Guidance on Hearing Impairment in the Workplace – Monterey Herald

      February 2, 2023
    • Literature

      Seattle Department of Arts and Culture Names 2023-2024 Seattle Citizen Poet Xin Yu Pai

      February 2, 2023

      ‘Correct Prison Manual’: Female Baloch Inmates Released After Passing Baloch Literature Exam

      February 2, 2023

      Researchers use AI to make texts thousands of years old readable

      February 2, 2023

      “Dream in the Crimson Room” is performed as toe art

      February 2, 2023

      Literature and books: Portsmouth news and information (Portsmouth)

      February 2, 2023
    • Living

      Delicious Living Magazine double winner for Kiss My Faces Moisture Shave at the 2023 Beauty & Body Awards.

      February 2, 2023

      Tracy’s tutor sells Christine Quinn’s house in Sunset

      February 2, 2023

      The man lived in a garage before filming in Opa Locka

      February 2, 2023

      Barcaro Buffalo Living & Commerce Announces Pace Strength and Conditioning as New Tenant

      February 2, 2023

      Self Help – Estes Park Trail Gazette

      February 2, 2023
    • Society

      The Outer Banks Voice – Phi Island Preservation Society Announces Three Events Celebrating Black History

      February 2, 2023

      Peninsula Humane Society & SPCA Pet of the Week: Kesha and Gosha

      February 2, 2023

      SML Chapter of Antique and Classic Boat Association Holds Winter Workshop

      February 2, 2023

      Ida B. Wells Society moves from UNC-Chapel Hill to Morehouse College

      February 2, 2023

      Wilton Historical Society Weekend Workshop

      February 2, 2023
    Facebook Twitter Instagram
    Ada Website Helper
    Home»Disability»La Quinta’s mom fights for inclusivity for her terminally ill son
    Disability

    La Quinta’s mom fights for inclusivity for her terminally ill son

    adawebsitehelper_ts8fwmBy adawebsitehelper_ts8fwmJanuary 3, 20232 Mins Read
    Facebook Twitter Pinterest LinkedIn WhatsApp Reddit Tumblr Email
    Share
    Facebook Twitter LinkedIn Pinterest Email


    La Quinta’s family remains hopeful after one of their children was diagnosed with a rare condition known as LMNA Congenital Muscular Dystrophy (LMNA-CMD).

    “We’ve been fighting for years to get tested for him, but thankfully we finally got an official diagnosis on November 18th,” said Cassidy Sipe, referring to her 5-year-old son Benji’s. We shared details about our health journey.

    In 2019, Benji injured his ankle while getting off the couch. His parents eventually learned that the incident was a symptom of his rare and severe condition.

    But at the time, Benjie’s pediatrician told the family that Benjie’s injuries were normal and that he was just learning how to walk.

    Until Cassidy had her third child, she decided to switch all three children to different doctors, urging the family to take Benji to a specialist at Loma Linda University Medical Center.

    Benjy’s mother believes the second opinion has provided clarity to the family about her son’s health.

    Benji’s condition is so rare that there is no cure or cure. His family focuses on ensuring he has a comfortable and fulfilling life.

    “All we can do is push his treatment forward and keep him as stable as possible so that he doesn’t progress too quickly due to lack of treatment. It’s very unusual,” said Cassidy Sipe, Benji’s mom. said.

    She explained that one of Benji’s favorite activities is going to La Quinta Park. Last August, the city installed accessible swings there to accommodate children with disabilities.

    “We really need inclusivity in our community,” says Sipe.

    Benji’s family is now crowdfunding to purchase a wheelchair van that has been converted to accommodate Benji’s constant travels from Coachella Valley to Loma Linda to see doctors.

    See News Channel 3 tonight at 6pm for the full story.

    Be the first to know when news hits the Coachella Valley. Download the News Channel 3 app here.



    Source link

    Share. Facebook Twitter Pinterest LinkedIn WhatsApp Reddit Tumblr Email
    adawebsitehelper_ts8fwm
    • Website

    Related Posts

    Disability February 2, 2023

    Southern District of Georgia | Lawrence County man pays reparations and could face federal jail for disability fraud

    Disability February 2, 2023

    Hitting the Snow with New Courses on Accessibility and Disability Justice

    Disability February 2, 2023

    ASBMB Calls for Broad Federal Efforts to Support Scientists with Disabilities

    Disability February 2, 2023

    State abortion bans based on gender, disability, or race are not a remedy for eugenics, paper says

    Disability February 2, 2023

    New Guidance on Hearing Impairment in the Workplace – Monterey Herald

    Disability February 2, 2023

    Hodges announces the Disability Advisory Board and invites public participation.news

    Leave A Reply Cancel Reply

    Don't Miss
    News February 6, 2023

    Google Launches AI Chatbot Bard To Compete With ChatGPT

    Under intense pressure to compete with ChatGPT — the much-talked-about AI chatbot that has become…

    Google releases new AI chatbot Bard to compete with ChatGPT

    February 6, 2023

    Elon Musk and Tesla found not liable in lawsuit over “funding secured” tweet

    February 4, 2023

    Delicious Living Magazine double winner for Kiss My Faces Moisture Shave at the 2023 Beauty & Body Awards.

    February 2, 2023
    Stay In Touch
    • Facebook
    • Twitter
    • Pinterest
    • Instagram
    About Us

    This website provides information about disability and other things. Keep Supporting Us With the Latest News and we Will Provide the Best Of Our To Makes You Updated All Around The World News. Keep Sporting US.

    Our Picks

    Google Launches AI Chatbot Bard To Compete With ChatGPT

    February 6, 2023

    Google releases new AI chatbot Bard to compete with ChatGPT

    February 6, 2023

    Elon Musk and Tesla found not liable in lawsuit over “funding secured” tweet

    February 4, 2023

    Subscribe to Updates

    Get the latest creative news from SmartMag about art & design.

    Facebook Twitter Instagram Pinterest
    • Home
    • Contact us
    • DMCA
    • Privacy Policy
    © 2023 adawebsitehelper. Designed b yadawebsitehelper.

    Type above and press Enter to search. Press Esc to cancel.